An update on us..

It's been nearly 2 weeks since I posted about Easter, it seems like a lifetime ago already, life is crazy and forever changing fortunately alot of good this time!


The Easter school holidays being the first for the boys was spent with Grandparents, for Felix it was a deliberate choice to make sure he didn't have to go to Vacation Care as he clearly needed a rest..

Felix and Oma reading Uno's Garden

I had 8 days away from him (except for one night when Mum brought him up to stay with us) and it was strange but I did realise how much we jam into a school day both he and I, it was quite a shock be able to get out of bed and into the shower and be at work by 7:30 am.. it is definitely easier than being working mum, getting a prep child ready for school... just looking after myself and while I missed him like crazy, I did appreciate the change of pace ...


His energy levels after the holiday have been much better, and we are starting to get to the bottom of the reasons for it, but step by step..


Monday (pupil free Day) was a physiotherapy assessment as the school is concerned with his muscle tone, he has very low tone in his over all muscles and gets excessively tired at school, he is behind is ages with balance, gross and fine motor skills and when he gets tired then he cannot cope with paying attention. This at present seems to be what is causing him the issues..


The Physio has given us 5 goals to work on:

1. Stamina increase
2. Coordination Increase
3. Muscle tone increase
4. Sitting in Class
5. Arm strength (fine motor skills)

We will have a session with her once a month and work on a program and reassess how he goes every month.

The first month we have been asked to buy a Trampoline (guess what he has for his birthday- pics to come) for stamina increasing (which I said was my first goal) and ball play, and encourage lots of running and swimming, basically as much physical as we can. Given her assessment of of low muscle tone, she said it is even more important for him to build these up to get through the day , it is obviously important for all children to be healthy and strong, but for Felix he needs it just to be able to do what his peers are....


I bought the Trampoline last week with him and it was delivered Friday, Mr G, L and I put it together and I realised what a great investment for all of us it is. I think Mr G and I had forgotten how cool jumping is..and such great exercise, i was surprised..L also thinks it is a fabulous investment and so great for the whole family..

We also had the ENT (Otolaryngologists ) specialist appointment which lead to the extraction of 2 very substantial ear wax plugs from each ear..so hellooo hearing! Felix was an absolute champ during the procedure (the GP wouldn't do it as the wax was very far down and I had spend weeks trying to get it out with wax solve) he gripped my hand and was extremely brave..

He has also suggested the removing his Tonsils and Adnoids would be of use and we are booked for extraction in July, I am still not sure it is vital, I am going to monitor his sleep patterns to gain a better picture of what is happening for him.....snoring and breath holding are something I have seen him do and given the reports from parents who say this procedure has very much improved their children's sleep and then energy levels/ behaviour..I am going to focus on the stamina building and see how we go..another reason for hesitation is the cost..$1500 out of pocket.. now if I think it is needed I will do it..but still on the fence a little....I think I'm going to try for a second opinion, I'm looking for a good GP in our area atm so hopefully might get someone a little more experienced than our current one..who is nice enough but seems extremely removed from everything I've been to him with..

So anyhow bit by bit we are getting some answers, the good news is with the hard stuff comes good stuff, knowing he isn't delayed comprehension wise is something I hold onto..though the Physio said if we don't get onto the physical delays we are going to wind up with one frustrated little boy come Grade 1...

Here I leave you with a day in the park on Brisbane Sunny Sunday with a Frisbee and 2 small boys..